Peoples Stories

Hi. My name is Inga and I have SCA1. I inherited it from my mother and have 53 repeats. I was diagnosed in 2002 at 21 and started getting symptoms around 2010. I am 40 now and have a plethora of aids. I am all for safety and comfort over pride so anything I can do/get to make my life easier i do. Why struggle when you don't have to is my thinking. Despite having this condition, I love my life, my family and friends, my animals and I like the person SCA has shaped me to be.

Hello, My name is Steve and live in the best place on earth (Brisbane).  I am 48 years of age (74 model).  A father of two girls (Hence thinning grey hair).  I was diagnosed approximately 2004.  Probably had signs of Ataxia my whole life, but only really only noticed them before I was diagnosed.  I was extremely sporty in my school years.  My SCA number is unknown at this stage.    I believe I am high functioning with an extremely positive attitude; "A person’s attitude is their biggest supporter."  I am retired.  Monday to Friday, I spend mostly exercising; Pilates, yoga, EP (exerciser phycologist), EP or physio students, bike riding (recumbent bike), etc.  I enjoy being active and I my theory is;   "Staying active helps slow/reduce the onset of Ataxia."  I find people with Ataxia are mentally sharp as a tac.  Physically not so sharp, but have a good sense of humour.  I find it fascinating seeing other people at my disability gym.  Looking at their personal aids (wheelchairs, etc) and seeing the ways they address/manage and overcome their barriers.  Coldness, fatigue and alcohol intensifies my Ataxia.  Although, I really enjoy a cheeky glass of wine.  If more people remembered.  “Someone else is always doing tougher than yourself”.  The world would be a happy place.